A structured 12 month multidisciplinary education model: for families of newly diagnosed Type 1 paediatric/adolescent patients (#39)
Background: The families of newly diagnosed paediatric/adolescent patients require adequate support and structured education early in the post diagnostic stage to empower them to efficiently manage a chronic medical condition. Families attended New Patient Clinic for 4 visits over a 2 month period and then attended paediatric/adolescent clinic every 3 months. From April 2011, the structure of the clinic was changed and families attended the 3 monthly appointments at new patient Clinic for 12 months post diagnosis before attending the paediatric/adolescent clinic. From February 2011, most newly diagnosed children/adolescents commenced multiple daily injections (MDI) and the multidisciplinary team consistently promoted set management goals.
Aims: To deliver information to newly diagnosed patients in a structured education model over 12 months. This improved understanding of insulin regimens and additional support aimed to reduce hospital re-admissions, increase appointment attendance, and sustain effective glycaemic control.
Method: Data from May 2011, from the introduction of the new multidisciplinary education model, was compared with data from the previous 12 months. The initial education remained the same however prior to May, 2011 patients attended regular paediatric or adolescent clinics from 3 months post diagnosis.
Results: 71 patients, 42 male and 29 female with a mean age of 9.1 years were diagnosed in the twelve months prior to 26/04/11. 62 patients, 35 male and 27 female with a mean age of 8.4 years were diagnosed between 26/04/11 and 26/04/12.
In the first 6 months post diagnosis 4 patients were readmitted to The Mater Children’s Hospital from the first group diagnosed prior to 26/04/11 and 1 patient admitted from the second group.
Conclusion: Early data suggests some improvement in HbA1c, however the numbers at 12 months are still relatively small. It is now easier to track missed appointments and provide follow up appointments and education. Appropriate evaluation of family satisfaction is necessary.